Comments on: Causes of High / Low Bilirubin Levels + Health Benefits

By: Carlos Irizarry

Carlos Irizarry — Thu, 08 Oct 2020 20:52:49 +0000

Hello, my billiruben is at 1.5 I am at a healthy weight and not other other lying conditions. My TSH is 1.265. Can issue improving my gut health help bring down my billiruben levels? Do you think probiotics can help with bringing down my billiruben levels?

By: jennifer young

jennifer young — Wed, 18 Mar 2020 22:57:12 +0000

Would caffeine tablets be as effective as coffee or other drinks.

By: Thomas Slocumb

Thomas Slocumb — Sun, 01 Mar 2020 05:26:11 +0000

Great Article and thank you for your dedicated research and sharing your findings in an easy to read manner. I have Gilbert’s Syndrome and sometimes suffer some abdominal/gut related issues but other than that all my other findings (labs, U/S results) all look normal. It’s nice to read the side effect of High Bilirubin can actually have some health benefits.

By: Lila

Lila — Thu, 30 May 2019 07:39:48 +0000

My husband has just checked into the ER with 4.4 bilirubin level. All the same symptoms as many of you mention and no liver disease. This has been going on for 3 years now. I wish we could get some real answers.

By: Filippos

Filippos — Sun, 14 Apr 2019 02:12:38 +0000

I also have the same symptoms that everyone is talking about here. The Gen. Mutation C677TT, IBS (Sibo, Candida). I think that the cause of Brain fog is Candida and SIBO. I get really yellow and feel sick on low carbs and fats or when fasting. I also see a connection to high stress and bilirubin levels. The Gallbladder and stagnant bile are really important in this. Milk thistle and teas can be beneficial. Check out Andrea’s Moritz Gallbladder flush and read his book. I haven’t tried it yet but I’m sure it can be beneficial or healing. There are also bile salts that can be taken but dont remove your Gallbladder of not necessary. It’s a really important Organ. Contact me at [email protected] if you want to exchange some infos.

By: Jenny

Jenny — Tue, 04 Sep 2018 04:35:41 +0000

Lots of people here talk about brainfog. It sounds like you have ME /CFS apparently 80% of people with Gilbert’s go on to develop this

By: Lynda

Lynda — Wed, 25 Jul 2018 01:58:42 +0000

You are absolutely and dangerously wrong about estrogen and Gilbert’s Disease. The study you are referencing is on healthy people who do not have Gilbert’s Disease. Those with Gilbert’s Disease are unable to effectively glucuronidate estradiol due to polymorphisms on one or more UGT1A genes. Therefore those with Gilbert’s Disease are more prone to estrogen dominant conditions including breast cancer and should avoid estrogen therapy including the oral contraceptive pill. Please amend your page (which is otherwise full of useful information). http://cancerres.aacrjournals.org/content/70/24_Supplement/P6-06-02

By: Bob

Bob — Mon, 25 Jun 2018 14:20:49 +0000

I have an elevated Bilirubin of 1.5 just this past thursday. I have abdominal pain and haven’t been having movements much. I just took a colon cleanse. Also have diabetes.

By: Vik

Vik — Tue, 19 Jun 2018 18:53:13 +0000

hi Sebastian. your symptoms sound very similar to mine (elevated bilirubin levels, no liver disease, fatigue, history of IBS, chronic pain, brain fog, and constant eosinophilia). I have been told that I have Gilbert’s Syndrome. However that does not solve my health problems. I have tested positive for SIBO, looking into that as a root problem at the moment.

Was wondering if you have made progress since you posted this.

By: V. freedle

V. freedle — Thu, 14 Jun 2018 19:38:06 +0000

I have a bilirubin of 3.0 was 4.0 last year and went down a point this year. Is this due to cholesterol medicine or blood pressure meds ? also does smoking cause the levels to increase?

By: Jessica McDermid

Jessica McDermid — Fri, 27 Apr 2018 05:14:50 +0000

@cameil
I had wuite heightened bilirubin levels and also iron levels in my blood. Further testing cams back positive for haemocromatosis. Itching skin is another symptom of this. Just a thought.

By: John F. Suello

John F. Suello — Sat, 07 Apr 2018 07:44:24 +0000

Hi. I’m just a little bit worried, hoping someone can help my worries go away. I have a total bilirubin level of 1.7. My gallbladder was removed 9 years ago. and recently i was diagnosed of having NAFLD. With this results, is it alarming already? Hoping someone will give me their replies. Thank you and God bless

By: Rin

Rin — Thu, 22 Mar 2018 05:15:00 +0000

Hello, I have very similar bilirubin levels as yours, my last test showed 0,5 direct and 2.1 indirect.
I have done ultrasound aswel and everything is normal there. I experienced yellowed skin a couple of times.
I do not really know how this started but my bilirubin levels are elevated since I’m 21 years old and I had been experiencing fatigue and body pain since around that age.. And it been constantly.

By: Camiel.alonzo@gmail.com

Camiel.alonzo@gmail.com — Wed, 21 Mar 2018 01:51:05 +0000

Danielle, did your medical issues begin with elevated bilirubin? I’m 29 years old. 2 years ago my bilirubin was elevated at 2.1. I had an ultrasound done which showed no abnormality. Most recently, my bilirubin levels have been as high as 3.1. My direct (conjugated) bilirubin is 0.7 and indirect is 1.8. Total at 2.5. I was prior diagnosed with IBS. I’ve recently had another ultrasound showing no abnormality. My liver enzymes all appear normal (ALT, AST). I’m desperately trying to figure out what’s going on and it seems my doctors are baffled. I’m waiting to get an approval for a specialist. My GP dianosed me with Rotors Syndrome. In addition, I have constantly itchy legs which I’ve heard could be related to the hyperbilirubin and my eyes look like they’ve been dipped in tea. I haven’t experienced yellowing in my skin, but absolutely in my eyes. I’ve begun taking milk thistle. Any advice or relation is so appreciated. Thank you!

By: carly

carly — Tue, 16 Jan 2018 19:13:48 +0000

My brothers bilirubin count is 60mg/dl on a good day. He drinks excess amounts of water, as this makes him constantly thirsty, and keeps him from turning yellow.

By: Tara

Tara — Sun, 07 Jan 2018 13:44:58 +0000

My lo was2lb 11 oz when she was born..no jaundice but was uncomfortable at times bout 2mo old she was admitted to the hosp for breathing problems larynx spasm got acid reflex stuck on epiglottis. .she had feeding tubes for the 1st month in the nicu. Icu they said her arching her back was gerd .shes now 1 no permanent damage. Off the rididine (baby zantec) all good now….good luck with your lo…check into it if your lo arches their back dont wait

By: Saret

Saret — Mon, 18 Dec 2017 01:05:07 +0000

My 8week old baby has prolonged neonatal jaundice.
The levels are dropping but he is stil very yellow.
a nuclear milk test showed that he has reflux and that 2 hours after a feed, his stomach is still very full / takes longs to empty.
He has loads of bubbles in his tummy and goes through frantic screaming and hours of crying to pass a soft stool. (He grunts a lot, passes lots of gas and then screams and cry so bad before he has an explosion in his nappy)
Dr said his bilirubin is unconjugated.
At this stage we are altering between breastmilk and nugate formula to help his digestive system.
He also has skin rash (rash more visible after reintroducing it into my diet).
Blood tests showed that his gal secretion is fine and that his Thyroid is under active.
We are waiting on more blood tests to see if he might have gilbert’s disease.
I’m so worried and sorry for my baby… he is in a lot of pain.

By: Michael

Michael — Sat, 07 Oct 2017 12:57:57 +0000

Start eating high cholesterol, and or fatty foods…

By: Bruce

Bruce — Fri, 21 Jul 2017 17:27:16 +0000

I have a question please. Is there a level at which one should be looking for answers and thinking they have a health issue? As an example, what if the Total BR is 2.5 or 2.9. is that considered a big deal? Thanks.

By: Sebastian

Sebastian — Sat, 01 Jul 2017 06:40:04 +0000

Hi Danielle,

Thank you for your kind and interesting reply. I’m sorry that you had this condition and I’m really happy that you made so much progress. Maybe you have an e-mail address so you we can discuss this further. My brainfog and fatigue is very bowel related, as I have confirmed dysbiosis and candida issues. My brainfog got worse since using biofilm enzymes and antimicrobial herbs which indicates that there is in fact a dysbiosis problem.
Sure the pancreas and the gallbladder are involved as well. It all get’s better when I’m fasted and it gets worse after eating. I have been to numerous doctors in the last 4 years and I lost my job due to the brainfog/dizziness.
Anyway, before taking such a big step as taking out the gallbladder, I would be interested in why gallbladder issues would be there in the first place. Gallbadder issues are very common. Once taken out, it can’t be put in.

I never had a HIDA scan and I will ask my doctor for one. I agree with you that ,,IBS” does not exist, but dysbiosis or SIBO does. Might that be an underlying cause for gallbladder issues. Impaired detoxification due to endotoxins could lead to all kinds of problems. I’m just asking because seldom I hear from people that taking out their gallbladder takes away all of their issues. But it happened for you I guess ;)

Anyway, my email is [email protected] . Any advice is much appreciated. I’m sorry If my writing is bad.

Regards

By: Paul

Paul — Sat, 01 Jul 2017 05:41:25 +0000

Some 45 years ago, I was diagnosed with Gilbert’s Disease. Now, I understand that they’re calling it a syndrome or anomaly, and that it’s benign. Well, all my life, I’ve suffered from IBS, lethargy or daytime sleepiness and depression. So, is it benign, really or is it a disease as it originally was 45 years ago?

By: Danielle

Danielle — Thu, 22 Jun 2017 08:23:38 +0000

Hi Sebastian,
I wanted to give you some advice because what you are experiencing sounds similar to mine. There could be many explanations, but try and at least ask your doctor for a Hida Scan. That’s where I would go first no hesitation. I had the same issue and for years doctors told me I had Ibs and I really thought that’s what I had, until it got so severe I couldn’t function. Some people take four years or more to diagnose, but a hida scan will tell you the function of your gallbladder. I never had stones or anything show on images, but sure enough when I had a hida scan I had a very low ejection fraction rate and when they took it out my gallbladder was basically dead. When I saw the surgeon before the operation and he asked me my history I told him I had Ibs, he said he never believes a patient has Ibs until they’ve had their gallbladder tested. I had mine taken out a few months ago…no more Ibs. I was jaundice a very long time so I’m still having jaundice issues although finally everything else has resolved after years. Also, another very unusual condition that can cause jaundice with similar issues are sickle cell disease, pancreas function, bile duct functions, ebv acalculous related cholecystitis, hepatitis, vascular disease and a few more, but those are main causes of jaundice with symptoms. I was on my deathbed before I finally got the right diagnosis and procedure to save my life and I’m only 29. It took me so long to recover because it took so long and I was in such poor condition when someone finally figured it out. I never even knew what the gallbladder did or would have ever suspected it as the culprit so I hope to help others and bring awareness so others may not end up like I did at 97 lbs fighting for my life waiting for an operation because it can commonly take over 3 months to get the operation. Some people will also advice doing cleanses etc, but from experience, do what your doctor and surgeons tell you. Gallbladder issues do not normally resolve without the operation and it may be only mild and occasionally, but it will always come back and the more it comes back the harder it is each time. Wishing you very well. I had lots of labs done over the 4 years. If you would like to talk to me any further or have questions please let me know.

By: Giuditta Del Vecchio

Giuditta Del Vecchio — Sat, 29 Apr 2017 18:05:48 +0000

In reply to Sebastian. You might have Gilbert's Syndrome

By: Angela

Angela — Sat, 08 Apr 2017 20:10:41 +0000

I have chronic LOW bilirubin (yes, I know the reference range starts at 0.0, but I am just barely over 0.0) and cannot find any information on how to raise it. I also have MTHFR C677TT. Even though I have been treating it with a bevy of supplements for more than a year, including Rx Deplin, my bilirubin level won’t go up anywhere near “normal.” Any ideas? I can find scientific studies linking low bilirubin to CAD (not surprising, given that MTHFR and CAD are chums), but this seems to be a problem no one else has.